Supporting SCA Survivors

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Organizations that offer support and advocacy

The list below includes patient organizations that offer useful resources which can be helpful to survivors on a multitude of topics.

Survivor Oriented Organizations:
 

Sudden Cardiac Arrest Association (SCAA)

Sudden Cardiac Arrest Foundation (SCAF)

The Mended Hearts, Inc.

WomenHeart

Adult Congenital Heart Association (ACHA)

Parent Heart Watch (PHW)

Sudden Arrhythmia Death Syndromes Foundation (SADS)

Hypertrophic Cardiomyopathy Association (HCMA)

Children's Cardiomyopathy Foundation (CCF)

Healthcare-Patient-Professional organizations:
 

American Heart Association (AHA)

Heart Rhythm Society (HRS)

The Pediatric and Congenital Electrophysiology Society (PACES)

Recommended Reading

  • Sotile, W.M. and R. Cantor-Cooke, Thriving with heart disease : a unique program for you and your family : live happier, healthier, longer. 2003, New York: Free Press. xiv, 303 p.[11]
  • Kastan, Kathy, LCSW, MA. Ed, From the Heart: A Woman's Guide to Living Well with Heart Disease, 2007, Cambridge: Perseus Book Group.

Learning to COPE

The Sudden Cardiac Arrest Association has developed COPE (Cardiovascular Outcomes; Psychosocial Education) as a resource for SCA survivors and their loved ones. 

COPE also provides resources for healthcare professionals caring for SCA patients. In addition to information on emotional, psychological, and neurological issues.

Survivor Support

Community SCA Response Guide

Learn About Our Partners

Heart Rescue Partners University of ArizonaDuke UniversityUniversity of IllinoisUniversity of MinnesotaAMR MedicineUniversity of PennsylvaniaUniversity of Washington